Friday, February 27, 2015

Hospital Again

Hey everyone!

Brian unfortunately took a trip back to the hospital last night. We knew on Tuesday that all his counts were low and they told us to just be cautious about not being around sick people. Brian laid low. Thursday night he was  feeling run down and had a 100.5 fever. The magic number that send us to the ER to be admitted. So he was last night.  He is feeling fine other than some sore mouth side effects from the chemo.

Although Dr. B. is not highly concerned. The infectious disease doctor wants him there for 48 hours with no fever. So if you're perfectly healthy and feel like dropping by to say hey just text to make sure it is a good time.  Hopefully he will get out Saturday or Sunday.

NYC Update
Our first two appointments are confirmed.  We were fortunate to get free one way flights through a foundation called Wings of Hope.  They will fly us home post surgery as well. Truly a blessing. We will be heading up just the two of us on the 17th. We have scans on the 18th and appointments on the 19th.  The 19th will let us know whether or not surgery is a go.  If yes, surgery will be the 23rd and we will be in NYC for up to four weeks.
It has been a planning nightmare because it is hard to look into lodging without having confirmed dates. So we are praying everything works out and have many contingency plans in place.  That being said, if you know a great place to stay in the city that won't cost a gagillion dollars, LET US KNOW!

Love to you all!

Thursday, February 19, 2015

New York Plans (well kind of)

Hi everyone!

First of all, once again we owe a big thanks! The donations and kindness continue to bless us and overwhelm us. We appreciate you all including you anonymous-ers. We have loved the meals, kindness of strangers, and security we receive from all of the support.

Second, Brian just finished his fourth round of chemo today!! Wahoo!!!!! Just fluids and a shot tomorrow and we get a little bit of a break. The third round was rough, so we are hoping that laying low this weekend will help make this fourth round seem like a piece of cake. Prayers and fingers crossed!

Third, we heard from MSKCC and our doctor's office in New York today.  Tentatively, we will have scans and an appointment with our surgeon on Thursday, March 19th.  After that there will be two options:
Option A: two more rounds of chemo at home
Option B: surgery on his arm/chest area on Monday, March 23rd.

Obviously we are hoping for Option B but are going to do what is best according to the doctors.  Again, this isn't set in stone until we hear back from them.

Our Needs
The only thing we need right now is lots of prayers. Prayers for Brian to feel great this round with no crazy side effects. Prayers for a planner like me to be okay when plans aren't easy to make.  Prayers that surgery is the next step.

We love you all!

Saturday, February 7, 2015

Counts are up!

Neutrophil count is at 900! They told us yesterday that no matter what we couldn't leave til it was 500. We are so happy. Now it's just a waiting game hopefully Brian will get released today or tomorrow! Yay! He's feeling a lot better. 

Friday, February 6, 2015

A Small Hiccup

Hello everyone. Just a quick update on our crazy week.  Brian has been feeling pretty run down since the last round of chemo. He has a slight cold and just didn't feel like he was rebounding the same as past rounds.  Yesterday he had some blood work and his white blood cell counts were low.  Then last night he had a fever. The rule is 100.5 or higher and we have to go to the ER.  So we went last night. They ran every test imaginable. They haven't found any infection which is good!  Brian is getting antibiotics and fluids to be proactive since he has such a low immunity right now.  He has to wait until his nuetrophil white blood counts reach 500 in order to be discharged. This whole process is so that we are better safe than sorry. It could take several days to get those counts back up. Pray that it is quick so that our little family can all be sleeping under the same roof!

Love to you all!

P.S. Is it a good sign when people say, "I remember you," when they see Brian?!?!