Sunday, January 24, 2016

What to say?

Hi everyone! 

Just wanted to put this here to help us all out! This is not an insult to anyone but just to explain our needs.

Many of you are probably thinking I don't know what to say. The best thing to say is nothing. No sad faces, no sad comments. Say hi, smile, give a hug.

We are living in optimism. So it's best to treat us like normal. Unless we talk about our health situation please don't bring it up.  You can always text Karen if you need to! 

We appreciate the outpouring of love and support. We love talking to you all. Please don't ignore us either, but it makes us feel best when we keep it positive!

Love ya!

Thursday, January 14, 2016

Are you Sitting Down?

Hey everyone,

The last you heard from us Brian had brain surgery, they got it all and did radiation to be sure.  We had a great month and Christmas.

Unfortunately last Friday Brian noticed his toes wouldn't respond when he told them to move. We called our doctors who said to watch it. Well Sunday it happened again. We went to UF Health ER where our brain doctors are. After an interesting ER night, a few days of testing, and lots of painful waiting it was confirmed that the cancer has returned to Brian's brain very quickly.

After a full body scan we also learned it is widespread throughout the body.

Today we met with Dr. B. We cannot say enough how much we love this man.  He loves us and cares and makes the best plans.  Our plan is to stop immunotherapy because it takes a long time to work.  In the interest of time, we are starting a pill form of treatment that will attack the cancer in the body.  In 4 weeks we will scan again and make a plan from there.

Whole brain radiation is an option if this new pill works. For now we need to try to get the tumors in the body under control first before addressing the brain tumor.

Brian feels great, looks great, and doesn't feel sick. As a family we are going to spend the next 4 weeks focusing on treatment and having tons of fun with family and friends.

Our needs right now are for prayers that the new pill works. Also if you want to have some fun with us please let us know!